During the initial period of discovery when you first learn that your child may have special needs or is diagnosed with a disease, may be a terrifying and difficult time. You may have a lot of questions, and maybe even start to use the internet to search things. However, when you finally hear those words “your child will have special needs as they grow up” is difficult for any parent to accept. You may feel confused, overwhelmed and angry.
Now comes the difficult, yet fulfilling job of raising a child with special needs. The more you are prepared and educated on how to care for a child with a disability, the easier the experience will be.
Here you will find information, resources and organizations dealing with different disabilities. Learning to be an advocate for your child will help them to advance and excel in life, as you will always be looking out for their best interests. You will know your child the best, and they will depend on you to speak for them in their journey.
TASH – a leader in disability advocacy
WEGO Health - health advocacy website
BeNotAfraid.net - Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis.
Wrightslaw Yellow Pages – Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates and attorneys for children with disabilities on the Yellow Pages for Kids for your state. You will also find special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations and government programs for children with disabilities.
Disclaimer: Please note that the information noted in this section is strictly for informational purposes to educate parents, and any recommendations noted are purely that, a recommendation and that we are not in anyway endorsing these products, or services. It is up to each individual to decide what is appropriate for their situation and or child. If you have any questions, please contact the manufacturer or association directly if you should have any questions. You should also consult with your child’s pediatrician for further medical information.