“I am a ‘mom-parenting-solo’ of an active nine-year-old living with #down syndrome. For me, the #national down syndrome congress convention is truly a family reunion. That feeling of extended family and support is priceless,” said Carole Guess, mother of Evan.
Guess is one of more than 2,500 people are expected to take part in the 2014 National Down Syndrome Congress Convention in
Indianapolis, who will experience the joy and camaraderie of coming together to recognize the value and dignity of those with Down syndrome.
Guess and her son Evan, from Indianapolis, have been involved in the convention since 2007, traveling and participating in the many activities the convention has to offer.
“I have realized how important it is to be an active, engaged advocate for your child, regardless of their abilities,” said Guess.
NDSC and convention host, Down Syndrome Indiana, invite families, educators and medical professionals to take part in this three-day educational event at the JW Marriott in downtown Indianapolis July 11-13, 2014, the first to take place in Indiana since 1976.
Guess’ involvement at the convention goes beyond participant. She is the founder of Minority Families Down Syndrome Network (MFDSN) and currently serves on the NDSC Board of Directors.
“In 2007, the NDSC Convention was in Kansas City,” said Guess. “One of the local affiliate members had this wonderful idea to get all of the families who had African American children with Down syndrome together for fellowship and a meal; that was the year the MFDSN officially born.”
Guess says that the best part of serving as a resource for other families of color whose children have Down Syndrome is the group gets a chance to share the awesomeness of their kids, while dispelling some myths, educating and advocating at the same time.
“The Convention is a comprehensive educational and networking opportunity for parents, professionals and community members alike,” said Guess. “There are sharing sessions and networking opportunities for new and expecting parents, for grandparents and for Spanish speaking parents and most importantly, there are several opportunities to dance! I don’t think there is another Convention like it anywhere.”
Read more about Carole: http://www.theidsc.org/2013/12/meet-evan.html